
Rick Guidotti's Positive Exposure project – in pictures
Rick Guidotti photographs children and young people affected visibly by genetic disease - and hopes to challenge us to think differently about what we understand by human beauty.
Wed 26 Aug 2015 13.31 BST Last modified on Thu 26 Mar 2020 14.41 GMT
Tyler
Tyler is a very happy and energetic kid. He enjoys playing outside with his older brothers, loves music and dancing. His favourite food is french fries and he loves jellybeans. Tyler is living with Congenital Melanocytic Nevi Syndrome. nevus.orgPhotograph: Rick Guidotti
Share on Facebook Share on TwitterBrothers living with albinism, Shinyanga Region, Tanzania, 2012
Currently, in Tanzania, there is the belief that the body parts of people with albinism possess magical powers capable of bringing riches if used in potions produced by local witchdoctors. Featured are brothers hiding at a school patrolled by armed security guards to keep them safe. underthesamesun.comPhotograph: Rick Guidotti
Share on Facebook Share on TwitterSimone
Simone is a great student with a lot of energy. He lives in Italy. Simone has Down’s syndrome.ndss.orgPhotograph: Rick Guidotti
Share on Facebook Share on TwitterPatti and Kevin
Kevin is living with Duchenne Muscular Dystrophy. Patti, Kevin’s mum, says: “I guess you can say that I’m an ordinary mom living with extraordinary circumstances because of Duchenne.” One of Patti’s goals is “to find ways to keep Kevin involved with his friends and the things that he likes to do – and make him the most balanced kid that he can be”. parentprojectmd.orgPhotograph: Rick Guidotti
Share on Facebook Share on TwitterBilly
Billy has Marfan syndrome, a connective tissue disorder. Billy wants people living with this condition to be proud of their long fingers, arms and legs. marfan.orgPhotograph: Rick Guidotti
Share on Facebook Share on TwitterCaleb
“My name is Caleb and I was born in Liberia. I am a twin and I am a little person. My twin brother David is not a little person and is average size. I love music, dancing and singing and want to get into music and acting when I get older. My dad says I need to study hard and get good grades in school in case this plan does not work out” lpaonline.orgPhotograph: Rick Guidotti
Share on Facebook Share on TwitterIrina
“I was born in Russia. I was put in an orphanage when I was four days old. My mum and dad adopted me when I was five, now I live in Maine. I like basketball, hockey and being a jokester. I have two younger sisters. I have achondroplasia, which is the most common form of dwarfism. My bones just don’t grow as fast as the average kids, so I’m short.” lpaonline.orgPhotograph: Rick Guidotti
Share on Facebook Share on TwitterGrace
Grace is a very active and happy young lady. She enjoys not only taking pictures but also posting pictures on her PEARLS Project page. She loves to swim, sail and horseback ride. Grace is also an avid performer. She takes singing and dancing lessons, which also includes her favorite part - being in shows! ndss.orgPhotograph: Rick Guidotti
Share on Facebook Share on TwitterPositive Exposure Exhibition poster, 2015.
positiveexposure.org/gallery/exhibitionsPhotograph: Rick Guidotti
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